Wednesday, August 21, 2013

Japanese Festival

Last Sunday, we went to the Japanese Omatsuri Festival.
It was everyone's first time to attend (except for me) and I'm glad my family enjoyed it. Next year, I'll let everyone wear Yukata & Jinbei for sure!

Posing beside a Mikoshi


Every time we go out with Isabella, I always sense/get a mixture of people's reaction towards her/us. To be honest, I really don't care and I don't really mind if they ask me questions. I think asking is better than judging. In the beginning, I always feel obliged to explain why she looks like she's 6 mos younger than her age or why she doesn't have any teeth yet. Then, I feel the need to explain even further. Sometimes, I still explain. Sometimes, I just go in agreement that she is indeed tiny for her age.

(Daddy's girl)


People getting ready to dance the Bon Odori


If you haven't been in one, I encourage you to attend. It's not a by invitation only event. Try the foods and try to have a sip of the drink called "Ramune".

'Til next time!

Thursday, August 8, 2013

Fourteen Months Ago

Just seem like yesterday when I was supposed to go to a friend's house for the kids play date. However, I have been showing signs of labour. We've been in and out of the hospital for almost 4 days. Rick has taken a day off for the "just in case". The day before, I told my friend Thienly that maybe I can still go to her place (since she lives nearer to the hospital than me so it's probably easier to drive myself there) - who am I kidding? Ha!

Now, I have this sweet "mama's girl" - oh yes, she is! I still can't believe it! I finally have a baby girl that I have secretly been wishing for. She doesn't have any tooth yet but she's crawling, babbling, pulling herself up and yes, even getting in trouble too! :) I have learned to embrace the delay, learned to wait as she will get there, eventually. I enjoy that moments and is thankful that somehow, her seeming like a baby still at this stage feels like making up for the times we lost while she was in the hospital. I get to enjoy her as a baby longer, probably not much longer. She's getting too mobile! :)

(Bella clapping her hands - yes, that is her proud face saying "Look at me, look what I can do ma!")
The first of this month, also marks a year since she had her open heart surgery. Always very thankful that she survived it & that she no longer need to take any heart-related medication. I still worry about it though - quite often that I probably should have.

She also had her first year vaccination last week. Had to postpone her MMR (Mumps, Measles & Rubella) vaccine because I was told before that she cannot have any "live" vaccine for a certain period of time after her heart surgery. After I got the go signal from the hospital, we had it earlier this week. She cannot have the live vaccine it if she is still receiving any blood transfusion or have received BT in the last 10 months (so I've been told).

To embracing the future.
Happy Weekend!





Wednesday, June 19, 2013

Somebody Turned One!

Last June 8, we were so grateful to celebrate this little girl's first birthday with some good friends.
I cooked ribs and chicken wings. And more ribs & chicken wings! Hahaha. Apparently, from what our friends tells me is that I cooked a lot of food. I guess I did. We had to eat leftovers for the whole week, every single day. LOL. I tried to cook it different ways cos we were feeling like gagging just thinking about anything BBQ, ha! :)

Seems only yesterday, when I held this beautiful girl in my arms. Where did the time go?




If I only knew that it would be this joyful to have her as a child, and that we will surpass some of the initial trials,  I wouldn't have worried too much when I was pregnant with her. This little gal has changed me more than I can imagine. She taught me patience, to be accepting and to love without boundaries because that is what she gives me everyday.

I'm really enjoying that she still seem to be a little baby to me.
So far, she has no tooth yet. She weighs around 17 lbs and still fits on an infant car seat.
I guess it is filling up the lost time I've had of her as a baby for the 3 months she spent in the hospital and I'm totally okay with it.

Did you know, that not only there is a delay of tooth eruption for babies with Down Syndrome but the set of teeth that comes out are also irregular? I saw that her 2 upper front teeth seems to be coming out first and I've been told that in some cases, their molars even comes in first.  

Here are some other photos:


I initially thought of renting a bouncer for the kids but since it was raining, I found someone to do face paint with us on Kijiji instead. She also does balloon twist & I think the kids had a great time!



 



'Til next time.
Thank you for visiting!

Tuesday, April 9, 2013

To Say Or Not To Say

Earlier this week, I was re-reading my post last March 16 and to my horror, saw what I had written on the 2nd to the last paragraph! I was surprised that I even said such a thing! I felt bad. I hope I didn't discouraged other moms out there. You know, I have good intentions, really. I want to encourage other moms or make them feel that they are not alone. I want them to know that it doesn't mean their child has a disability, means they can't have happy ending. But it's just that.... sometimes... or most of the times... it doesn't come out the way it's supposed to be, ha!

Speaking of not saying the right things, few weeks ago, I ran into this blog (from another mom whose child also has DS) and read a post of "what and what not to say" to a parent who has Down Syndrome. Honestly, after reading that post, I felt even more confused, and I have a child who has Down Syndrome. Don't get me wrong, I think there are some good pointers there & I understand that when Isabella was still in the hospital with one problem after the other, I got really sensitive. But it's really hard to know what and what not to say & when & when not to say things. I guess it depends on who the person is & how well you know them. Nowadays, I find that you can easily offend someone just by saying "Don't worry about it". They'd think you're assuming that they are worrying (even if they already said they do), or maybe you're comparing things or that you're being too positive that it sounds unrealistic to them.

Sometimes, people will come up to me and say, "You're lucky because you're going to have a happy child". I admit, sometimes it gets to me because we all have our own temperament regardless we have disability or not & I feel it's wrong to assume that because my daughter has Down Syndrome, that she will be a happy child - all the time. It's like saying that all red head people are hot tempered - and no one can get away with it or that I'm a bad driver because I'm Asian (aren't I? haha, joke!). In the end, I try not to be bothered by it because people mean well and as much as it's difficult for the parent, I think it's hard for the people around them too.  As long as I know their motive is good, that's good enough for me!

Yesterday, we finally were able to go to the pool after missing it for 4 or 5 weeks because of Isabella's cold. It was fun & I think Isabella enjoyed it more this time! There were some new faces too & heard some new stories. I hope I can take pictures next time to show you.

Tomorrow, we're going for Isabella's holter. We had her echo and ECG a couple of weeks ago and it seemed good! Now, if she doesn't have any extra heartbeat this time, she's going to be off this particular medication she's into to regulate or slow down her heart rate. Yay!!

 Just sharing these photos I took of the family last couple of weeks.

I feel like my kids all have mischievous faces, even this little girl!
 

See, now it shows her personality, hahaha. She loves pulling hair - and guess who her favourite toy, I mean person is? 

This photo has slightly different color because of different light.
I don't know what it is with boys these days but mine definitely are growing their hair long! 

Having a good time! Aren't you done pulling hair yet, Bella?

While I see a lot of my friends on FB getting busy with losing weight, working out & eating right,
I was also busy chomping on my midnight Kozy Shak snack, baking cookies, cheesecake,
or generously spreading Nutella on my dinner roll, haha! I guess, all my bad eating
habits is starting to pay off! lol.

For Bella, as long as you have a hair, she's good to go! Pulling hair again. 


It's all in the feet! Hahaha. 



It's going to be a busy month - we are moving to a new home! :)
'Til then! Enjoy the little things!

Wednesday, March 20, 2013

RSV Prevention - What Do We Do?

Due to recent family events (my poor 5 week old nephew has one right now), I thought I'd write about RSV prevention on this post instead of the physio video that I promised, sorry.

RSV is still going around, sadly. Isabella had her 5th shot earlier this week & is due for her 6th in 6 weeks. I did a short introduction about RSV on this post. This link may also be useful information. Fortunately, she hasn't gotten RSV, thank God. We are really working hard not to get it and I hope that she nor any baby would ever get sick wit.  h this mean virus.

Here are some prevention method we practice in our family.

  • We do not let her go near anyone who is sick whether it's in the house or in the car unless it is our immediately family (me, my husband, and the 2 boys). If any of us are sick, we minimize contact with her. If I am sick & since I can't minimize my contact with her, I can avoid kissing in the mouth or putting my mouth or nose anywhere near her face but I give her lots of hugs instead.
  • If we are having visitors over, we tell them to inform us ahead of time if they are unwell or we re-schedule any appointments or visits we have with them. 
  • Per nurses advise, we try to avoid car rides with others to minimize any risk since RSV can also be spread through droplets. 
  • I wash all her toys, sheets, blankets, jackets, sweaters, gym mat at least once a week. If it drops on the floor in a mall or supermarket, there is no way I will wipe that toy & give it to her. It'll have to go in the washer or has to be properly sanitized first. 
  • If we get sick including the boys, I change bed sheets once they start to feel better (regardless if I just changed it). Along with it, I sanitize very important germ-magnet places/things that we unconsciously touch all the time such as door knobs, side of the door, bathroom counters, faucets, sinks, stairs railing, TV remote, computer keyboards, mouse & more. 
  • I always carry a hand sanitizer with me, 100% of the time. When I'm at a mall or supermarket (where people touch almost everything, esp in the produce section!), I sanitize after every time I touch anything, esp before I touch Isabella or any object/food I will give to her (if she's with me at the store). My hand may be as hard and dry as concrete right now but hey, if it'll keep my baby safe & healthy, it'll do for now! :) 
  • We try not to bring her too often to public, crowded places. I still go to the mall with her. Sometimes, I think she needs to be out there too and so do I (mine is not about sanitize issue but sanity issue! LOL!) so I just make sure that I always wash or sanitize my hands. 
  • When I bring her to the hospital for appointments, therapies, I always make sure that her car seat & stroller canopy are covering her (to avoid people from peeking & breathing on her or touching her) and to avoid any virus/bacteria that are transferable by droplets (like RSV). 
  • I make sure that I cover her bottle brush in the kitchen to avoid contamination with any meat or any type of bacteria that can be found in kitchen. I also dry her bottles in a separate tray and not in the kitchen counter. 
  • We ask anyone who holds her to either wash their hands or sanitize it. Most of the time, family & friends have been really good about this that I don't even have to ask them! 
  • Most importantly - Hand washing - we all do this religiously! 
So you may ask - which one is worse, RSV or Pneumonia? 
Based on personal research, RSV can lead to Pneumonia. Although you can get RSV Prevention by having Palivizumab shots, you cannot treat it with antibiotics (unless there is a complication, ex. ear infection) like you can do with pneumonia. 

I hope this little bit of information helps. 

Here's to hoping you & your family get RSV free and prayers to my nephew for his speedy recovery. 

Saturday, March 16, 2013

Box Full of Chocolates

One fast month have gone by. Isn't it scary that time seems to go by quicker these days?

I am not always the type to bring my children to baby class or a baby group when they were little. I just didn't feel the need or find valuable reason to bring them to one. Even after Isabella was born, sometimes, the staff at the Child Development Centre would ask if I would like to stay for the baby group. I've always politely turn down that offer. Maybe I'm afraid that she may get sick or catch someone's cold by mingling in baby groups.

3 weeks ago, it changed me.
We were at the Children's Hospital.There was a nice warm salt pool where many children benefit from having water therapy and it was Isabella's first time. We were worried about her SVT (Supra Ventricular Tachycardia). I'm not quite sure how her heart rate would be in water because of the pressure. However, after a go signal we got from Cardiology, away we went. Isabella always loved the water but she was quite hesitant and worried when we were in the pool. I waited for her cue. She didn't cry (almost did) so we stayed in the water. She held on to my hair mostly for the whole 45 minutes (which was fine it that made her feel better). She started feeling a bit more comfortable towards the end and I was happy.

There were at least a dozen other mom/babies that was in that group - all babies (I assume) if not, most have Down Syndrome. I didn't get a chance to say hi or talk to everyone. Few more came by for the later class & they were the toddlers. Suddenly, I felt like we belong and it was a wonderful feeling. They all have beautiful babies.

Unfortunately, Isabella has already missed 2 sessions due to a nasty cold. I had to rush her to the hospital too last week due to it and some weird eye reaction to antibiotics (Garamycin) which the ER Doctor asked us to stop using.

So far, I have been diligently sucking her snot (excuse me for my lingo!) using this NoseFrida SnotSucker. I really recommend this product. I've tried different nasal aspirator for both boys and I wish I discovered this when my boys were little.

I'm really looking forward to for her to attend the water therapy again this Monday.

NoseFrida the Snotsucker!

Last week, this little girl turned 9 months. Wow!

9 months and 5 days - love her to bits

Although, it still wouldn't have changed our decision to keep her - I admit, when she was going through some really rough time - asking myself if we made the right decision to keep her & have her experience this suffering came to mind. I remember my husband telling me at that time that if she passes on because of so much health complications, it will be painful but he'd accept it rather than opting for an easy way out because we could have had a child without Down Syndrome and may be faced with the same situation.

I hope every parent with disability or any medical/mental condition can come to term that there is no guarantee. Like Forrest Gump says "Life is like a box full of chocolates, you'll never know what you're gonna get". We could all give birth to a perfect healthy baby and I do not wish it for any parent but we could still have problems later on. We had a rough start and more challenges is yet to come, maybe some will be lighter, some may be hard but no one is spared of it. We all have different cross to carry. We are never alone.

On my next post, I'll add some photos/videos as to how I do physio therapy with her at home. We also recently started a massage therapy. I'll have to ask permission from the child development specialist if I could post her writings/guidelines in my blog to help other parents who can make use of this therapy.

In the meantime, have a beautiful weekend!

Thursday, February 7, 2013

Congenital Heart Defect Awareness Week

* WARNING: THIS POST MAY CONTAIN MEDICAL GRAPHIC IMAGES 
AND MAY NOT BE SUITABLE FOR SOME READERS. * 

 Congenital Heart Defect Awareness Week starts today until the 14th!   

Do you have a family member or know someone who was born with a Congenital Heart Defect? Congenital Heart Disease is considered to be the most common birth defect and about 40% of kids with Down Syndrome are affected by it.

In lieu of CHD Awareness week, here is Isabella's Heart Story!

Since I already have 1 in 2 ratio of carrying a child with Down Syndrome during pregnancy, the doctors have followed me & Isabella's heart closely by having Fetal Echocardiogram tests. The results were fine in each test & I was relieved to find out that despite of 99% chance that she may have Down Syndrome, at least, she'll have a healthy heart!

When Isabella was born, she required an immediate surgery that is related to a GI (GastroIntestinal Defect) and had to stay at the ICU shortly after I delivered her. On her 4th day (prior to surgery), the Intensivist told us that Isabella has a heart defect called VSD (Ventricular Septal Defect). The doctor probably saw the shock on my face & immediately said "Your baby has Down Syndrome, she will come with something". I admit, it wasn't very comforting but he said that the good news is, it's a small hole and she will outgrow it in a few months to a year.

2 day old Isabella at the ICU - and a visit from her brothers who after already scrubbing/washing their hands & is still sanitizing because they are eager to touch her.

Fast forward four (4) weeks of staying in the hospital (including a transfer), and after two (2) surgeries, two (2) procedures, a Stridor, some blood abnormalities (one is them is showing Toxoplasmosis - we didn't even have a cat, and RH Incompatibility). They also discovered that she also has Acquired Hypothyrodism, some kidney & liver problems (Jaundice & Cholestasis) and Gastroesophageal Reflux, the doctors were quite puzzled as to why she still requires an oxygen when the hole in her heart was small & everything else was being treated.

One of the new doctor in charge said that the murmur in her heart was so quiet - which means the hole is bigger. She asked for an immediate Echocardiogram. I even questioned it since Isabella's Echo is not scheduled for another 2-4 weeks (I guess I couldn't bear to hear a possibility of another problem when we were already dealing with one after the other. The initial 4 day plan stay at the hospital for surgery & recovery turned into a month.

True enough, they found out that the hole in her heart was not small but big, it was 5mm. They said that she needed an open heart surgery & the Cardiologist assured me that she will come back a new baby. I came home that night, cried & told my husband that I cannot take it anymore. He then said "Your daughter is fighting for her life at the hospital and you're just going to give up that easily?" Ha! That was a good wake up call!

Isabella was on a wait list for a heart surgery that has to be done in Edmonton, Alberta. They were trying to 'beef her up' prior to surgery so they added sucrose then eventually canola oil in her diet but very minimal success. Not long after, she was getting into so much heart failure {I know, the term sounded awful & I cried the first time they mentioned it in the morning rounds}. I guess in a way, it's like a never ending marathon or a never ending climbing up a flight or stairs for her that she couldn't even keep the food she eats for long before she throws it up again. Have you ever tried eating right after a 30 minute cardio/running?

Another Cardiologist was on duty at that time & have helped us bump up her surgery & the hospital in Edmonton agreed that her heart failure was getting worse. Her organs were also starting to fail. She was already on a daily CPAP at night & soon had to be in a ventilator. They were also kind enough to let her come home to us for a few hours, few days before the big day.

Isabella's first time at home but just for a few hours prior to surgery. 
On July 30, 2012 she was air transported to the Stollery Hospital in Edmonton, Alberta for her scheduled surgery on Aug 1, 2012.


They performed different tests and echocardiogram and found out that she has 2 more Congenital Heart Defect! Turned out she had a PDA (Patent Ductus Arteriosus) and PFO (Patent Foramen Ovale).

The surgeons rely a lot on the Echocardiogram so we had to wait until Isabella was asleep before they could do the test - this is non invasive & didn't harm her at all. 
Rick and the boys had to go back to the Ronald McDonald house the night before surgery. I barely slept, kept convincing myself that she really needs this and it will make her feel better. I couldn't even explain what I felt that morning as they wheeled us down to the surgery room in a stretcher. I don't think I have ever cried that much in my life. I don't remember praying as hard as I did that morning. As they took her off the oxygen tank, I remember handling her to the nurse & told her to hurry while she brings Isabella to the surgery table due to Isabella's low oxygen reserve .

One of the nurses escorted me back in front of the PICU where Rick & the boys were waiting.
Her surgery lasted 4 hours and they were able to fix 3 heart issues in 1 surgery and she won't ever need any follow up surgery at all.

The doors to the PICU at Stollery Children's Hospital. 

I saw the surgeon came out from the surgery room. I started crying again as he walked towards us through that long hallway. He said "Good news, your daughter did very well and the surgery was successful". I cried even more but this time, with happy tears. The other news was her electrical conductor may have been damaged or it could just be blocked (we were already told prior to surgery that it could be possible that it could be damaged).

Few hours after surgery
We know she was in good hands but it was really tough to swallow to see your child like this and still feel helpless. Her heart's been fixed! That's all should matter but I couldn't help but worry about her recovery.

We were warned that she will be intubated (on a breathing tube) for a long time because she was in so much heart failure. But guess what? On day 5, they took her off the breathing tube and extubated her to CPAP and a Nasal Canula high flow the next day. Luckily, Rick was at the hospital that night & witnessed how great his daughter have been (before he had to go back to Calgary for work).

Isabella on a high flow nasal canula (oxygen).
On the 7th day, they moved us to the ward and happily told us that she was doing fantastic. She was awake, kicking & eating well. I wasn't being cynical but after hearing some horror stories, it almost felt too good to be true.


That night, the nurse on duty told me that she will take her off her oxygen. She was still being monitored and I was the one who was scared & kept on putting it back on. She let me a few times and finally told me that she was going to take it off anyways once I leave (funny) & so she did. When I came back the following morning, Isabella didn't really need the oxygen anymore. What big of a change is that?! I was so happy. We were all happy.

On the 11th day, Rick came back to drive the boys back home while me & Isabella were transported back to the Children's Hospital in Calgary.

The boys had a chance to escort their sister inside the ambulance and see how it looks like. No, they didn't get a chance to ride it but it was an awesome experience for them. 
We were greeted back by our family (doctors and nurses) at the Children's Hospital in Calgary. Isabella had to stay there for another week to recover and be observed. She did end up with an SVT (Supraventricular Tachycardia) but didn't require an internal pacemaker. Great thing is, it's controllable by medication & has a possibility of outgrowing it in a few months. 

Isabella was on sternal precaution for about 6-8 weeks. We could only scoop her and she wasn't allowed to have tummy time. I think the hardest for me was giving her a bath & letting go of the fact that she can finally be in her tummy. 

1 month and 8 days after surgery. Her stitches has healed very well. 
Fast forward 6 months, she is now rolling over (she's always on her tummy) and her incision has healed really well. She does not have a feeding tube anymore too! Of course, we are doing our very best for her not to get sick or catch a cold but we are thankful every single day that she has healed - for good. She did come back a different baby! If it weren't for our faith, we may not be where we are now. The experience that we had may not be the greatest but it made our family stronger.

Isabella, 6 months of age.

I'd like to leave you with a Bible verse from Revelations 21:4

And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.

You and your child may have a rough start too but it doesn't mean you won't have a happy ending. I genuinely wish the best of health to all sick kids out there.

To good health!

UPDATE!
In April 2013, after several tests (Holter, ECG, EKG) and 13,000 extra heart beat daily, we were told that her SVT was gone. She doesn't need any medication and would only see Cardiology once a year. What a beautiful gift indeed!!!

Monday, February 4, 2013

Can You See Me?

Isabella had to go for an eye test last Friday at the Children's Hospital. It went great! She cooperated well and the Optometrist was awesome!


The Optometrist performed different kind of tests on her. Last one was using the drops to dilate her pupil (which Isabella tolerated well). Once their pupils are dilated, they become very sensitive to light so I suggest that you bring sunglasses with you and put it on after your child's appointment.

I added those stars because she was a rockstar during the test! :)

If you have no access to Physio, here is one easy exercise the PT suggested me to do that may help your baby too to crawl. Isabella is not crawling nor in the crawling position yet so I try to practice this exercise with her everyday.

I practice kneeling with Isabella by holding her knees together under her pelvis while leaning forward onto a support (which is my hand in her chest). If you notice in the last part of this 30 second video, she has pretty much tried supporting her weight by stretching out both arms. I pat her on the arm & acknowledged that she's doing a fantastic job!



Here is the mat that we use. It is from Tiny Love and the model is Super Deluxe Lights and Music Gymini Acticity Gym. We love this product! There are so many features why we love it but first of all, the music player is detachable so you can put the mat in the washing machine - very important for us that we can sanitize this. When I detach the music player (the red lighting thing in the video above that she's looking at), I use it as another toy. Second, it folds flat so it's perfect for our little home! Every feature on this mat, from the hanging toys, to removable toys, arch and music player, texture, little sounds from the animals on the mat itself are all useful and my baby enjoys it.
Tiny Love Super Deluxe Lights and Music Gymini Activity Gym
I hope you can use this exercise too with your baby.

You know, it's so easy for us to compare our child with someone else, especially when it comes to milestones & when some parent brags how their child can do this and that. I admit, sometimes, it gets to me and I'm guilty of comparing & worrying. When I do, I always try to remember that my child will achieve that milestone no matter what, it may take longer but she will achieve it. 

So here's to believing and to a wonderful week ahead of you! 

Friday, January 25, 2013

Some Observations & Realizations

Seems like I have been away for a while. I guess I was.

There are lots of little things happening here & there. Sometimes, life can get busy & on the go that you forget to bring the camera or snap some photos or blog. Kids are over the cold and while I thought Joe caught the stomach bug last week, we were still spared of it. Thank God!

Last Friday (18th), Isabella had her 3rd RSV shot (she will be getting a total of 10 in a year). Shortly after her shots, we had to run across the street to the Down Syndrome Clinic (as what many people call it) but it's the Child Development Centre. I love them all there, they are a great team!

I'm really pleased to hear from them how great they think Isabella is doing. When you have a child with DS or other disabilities, most likely, you will be dealing with Hypotonia (low muscle tone).  While I believe babies have the natural ability to discover themselves, their interests and what they can do, I also try to help & guide her everyday as much as I can to improve her motor skills, mobility and trying to keep her healthy at the same time. Having that validation of your work can feel pretty darn good! :)

Yesterday, she had her 6 mo vaccination at a clinic. If you haven't heard my daughter cry, she can go pretty all out sometimes! It is hard to believe how a tiny little body can produce such a loud sound. Although I think she didn't cry so much at the clinic, she managed to burst some blood vessels on her face, ha! (The little red dots on her face).


The other day at the mall, while waiting in line to pay for some shirts I got the boys, I was next in line to a  woman at the till who was with a guy (he was about 5 feet away from her & was about a foot closer to me). Despite the distance, I assumed they were together or a family since the little girl who was with the man looked exactly like the woman in the till. Anyways, the man's back was facing me so I didn't see his face. Then, the little girl who was about 2 or 3 years old peeked from one of the bins below & said "hi" to me and I smiled & said "hi" back. I then saw him looked at me & started shaking his head. I thought he didn't like it so I felt awkward, almost ashamed. I observed him more and saw that he still keeps on shaking his head & seems to have been uttering something to himself while trying to finish his sandwich. I realized that he has some mental disability of some sort. What it is, I don't know.

I felt scared for a moment. I didn't know if he was upset and I feared that he may do something to Isabella if he was, since the stroller was closer to him (I know, I can get a wee bit paranoid sometimes). Then, I quickly realized that my daughter too has a disability. I felt so bad & guilty. I wish I knew what he has, maybe I wouldn't have felt afraid? I'm thinking, my daughter may look cute now because she's still little but I hope someday, when my daughter is older, that people wouldn't get scared of her disability too based on her looks or maybe difficulty of speaking or some mannerism. I hope we can get more education about the different disabilities out there. Sometimes it's sad that we have to be affected by it first to really find interest to learn about disabilities. I hope I can use this blog as a tool to raise awareness about people with disability.

There was another photo of Isabella I took earlier this month that I forgot to attached. I thought she was pretty darn cute, don't you think?


Wishing you a sick-free and wonderful weekend!











Tuesday, January 8, 2013

7 Months Ago....

Seems like just yesterday.
When I had this little life inside of me.

I was worried, yet hopeful.
But one thing I know for sure, I was happy.

******************

Fast forward 7 months.
She's as determined and strong will as she was in my tummy.

I don't think I could ever take away my worry, but I can make plans for her future.
And learn to live life as we go on.

There's still one thing I'm sure of...  I'm happy to have her and I wouldn't have it any other way.



Oh..... all the stories I'll tell her someday.
Or perhaps, this blog will help tell her own story to her.

Happy 7 months our little Isabella!
We love you from the bottom of our "hearts".



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