Saturday, March 16, 2013

Box Full of Chocolates

One fast month have gone by. Isn't it scary that time seems to go by quicker these days?

I am not always the type to bring my children to baby class or a baby group when they were little. I just didn't feel the need or find valuable reason to bring them to one. Even after Isabella was born, sometimes, the staff at the Child Development Centre would ask if I would like to stay for the baby group. I've always politely turn down that offer. Maybe I'm afraid that she may get sick or catch someone's cold by mingling in baby groups.

3 weeks ago, it changed me.
We were at the Children's Hospital.There was a nice warm salt pool where many children benefit from having water therapy and it was Isabella's first time. We were worried about her SVT (Supra Ventricular Tachycardia). I'm not quite sure how her heart rate would be in water because of the pressure. However, after a go signal we got from Cardiology, away we went. Isabella always loved the water but she was quite hesitant and worried when we were in the pool. I waited for her cue. She didn't cry (almost did) so we stayed in the water. She held on to my hair mostly for the whole 45 minutes (which was fine it that made her feel better). She started feeling a bit more comfortable towards the end and I was happy.

There were at least a dozen other mom/babies that was in that group - all babies (I assume) if not, most have Down Syndrome. I didn't get a chance to say hi or talk to everyone. Few more came by for the later class & they were the toddlers. Suddenly, I felt like we belong and it was a wonderful feeling. They all have beautiful babies.

Unfortunately, Isabella has already missed 2 sessions due to a nasty cold. I had to rush her to the hospital too last week due to it and some weird eye reaction to antibiotics (Garamycin) which the ER Doctor asked us to stop using.

So far, I have been diligently sucking her snot (excuse me for my lingo!) using this NoseFrida SnotSucker. I really recommend this product. I've tried different nasal aspirator for both boys and I wish I discovered this when my boys were little.

I'm really looking forward to for her to attend the water therapy again this Monday.

NoseFrida the Snotsucker!

Last week, this little girl turned 9 months. Wow!

9 months and 5 days - love her to bits

Although, it still wouldn't have changed our decision to keep her - I admit, when she was going through some really rough time - asking myself if we made the right decision to keep her & have her experience this suffering came to mind. I remember my husband telling me at that time that if she passes on because of so much health complications, it will be painful but he'd accept it rather than opting for an easy way out because we could have had a child without Down Syndrome and may be faced with the same situation.

I hope every parent with disability or any medical/mental condition can come to term that there is no guarantee. Like Forrest Gump says "Life is like a box full of chocolates, you'll never know what you're gonna get". We could all give birth to a perfect healthy baby and I do not wish it for any parent but we could still have problems later on. We had a rough start and more challenges is yet to come, maybe some will be lighter, some may be hard but no one is spared of it. We all have different cross to carry. We are never alone.

On my next post, I'll add some photos/videos as to how I do physio therapy with her at home. We also recently started a massage therapy. I'll have to ask permission from the child development specialist if I could post her writings/guidelines in my blog to help other parents who can make use of this therapy.

In the meantime, have a beautiful weekend!

1 comment:

  1. She is sooooooooo beautiful!! Glad you did the water time with her!!!


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