About


You may be diagnosed to be carrying a child with down syndrome or already have one. Whatever it is that brought you here, I am happy to see you!  

I was 36 years old when Isabella was conceived. At 12 weeks, they asked me to go to a waiting room after my 2nd ultrasound. They told me that my baby has no nasal bone, high nuchal transluscency of 3.8mm and that my blood work was off (hCg was high and my PAPP-A was too low). They also found a cyst near her kidney. That's when they diagnosed me of carrying a child with down syndrome and gave me 1 in 2 ratio. 
When I left the clinic, I was shaking my head how these people treated me like as if I lost a child. So what? My baby will just have down syndrome. I was more concerned about the cyst in the kidney & how it would affect her. 

In the car, it started to sink in a bit more... 
When I got home, it sank even more....
By night time, I started reading more about Down Syndrome...
.....then I cried and cried and cried....

The thing that strike me the most on what I read was, most of them will have an intellect of a 9 year old. 
I asked my husband, "what would happen to our baby if we die? Who would look after him/her"? 
I cried even more.... 

That's just the beginning....

We were referred to a specialist, a geneticist, and never ending tests and ultrasounds. They have offered us an option of terminating the pregnancy & have continuously been offered amnio test but we refused. We decided that we will accept this baby, regardless. We have been victims of society to be "perfect" and "accepted". Many of us always tend to look on the outside, whether it's shopping for vegetables, fruits or even clothes. This baby is not like a bruised apple that we can throw away. Life is so precious to be throwing away! I'm sure if she would have an option, she probably wouldn't want to have down syndrome as well.

I admit, on many occasion, I hoped and prayed that this baby won't have down syndrome. Sometimes, I think if I was praying for me or her. Was it because I'm in doubt of whether I could handle it or was it more for her benefit? Either way, it wasn't an easy pregnancy - emotionally and mentally. My husband said that if God gave us this situation, He will see us through it. Towards the end, I have learned to let it go and prayed that whatever God's will was, that He give us strength to handle & the wisdom to understand.

On June 8, 2012 at 37 wks, Isabella was born with Down Syndrome.
That's when our journey started and the hope of happy ending began.



I'm sure there are already a lot of advocacy blog out there that are related to disability but every experience is unique. I'd like to document not just the struggles of raising a child with Down Syndrome but very importantly, milestones and perhaps, inspiration.

We are fortunate & blessed to be living in a city that has vast support and early intervention for children with Down Syndrome. I would love to share these information or techniques that can help other parents who does not have access to services that we have whether it may be what to expect on a sleep study test or what are some good physio exercise for the baby etc.

If you have a child with disability and have a blog, please let me know, I would love to visit and be inspired too! We all have a story to tell, what's yours?







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